Thursday, September 8, 2011

Thursday, September 8, 2011

oh wow! Where to start, i have so much to share, and first i will start with my hemodialysis treatment today. For once, no one complained about the time i arrived, as i had my case manager, Ray, talk to the head about a certain tech, who is the only one that comes with that bull sh!t (excuse my french, but i was truly pissed), first of all, having to get up at 4:15 AM, and bust my ass, getting to the unit at 5:15AM, especially not having much energy or getup these days, because my lung issues, i came to the unit, looking for that so and so tech, but she was off, and the nurse, that last put me on, wasn't there either, so Ray couldn't confront them. However, the tech and nurse, that assist me with my preparation for put on, didn't say a thing, it was pleasant, and my treatment was running smoothly, until about 15 minutes before take off, i began to cramp in my left calf, and my UF, was then turned off. Believe or not, i am happy that i finally experience cramping, because that gave me an indication that i had reached my target dry weight. After she turned my UF off, i began to cramp in my right calf as well, now, that is just showing off, i wanted some cramping, but not that much cramping. It was almost like i had never stop Hemo, after ten years, it was all dejavu, just like i remembered, but what i don't want to experience, is that rapidly plummeting b/p episode,i swear it feels like you are losing touch with reality, can't hear, the vision gets severely blurred, i truly don't like this feeling. I took my weight, after i was disconnected and the usual cleansing and dressing for my catherer, i went to do my weight and it displayed - 45.2kg, after many weeks of challenging my weight,with no success, i think i had finally reached my target dry weight. Although i am still having these symptoms, excessive coughing and shortness of breath. I went home and NAP for a couple of hours. I was suppose to have a live chat with Oprah on facebook, but that didn't transpire, as i think something was truly wrong with facebook, because others registered for the live chat, left a message, that they couldn't navigate this feature on f/b. I was truly disappointed, as i had left her a message on her wall, about the possibility of talking about CKD, which is very seriously on the rise in this country and all over the world for that matter. I mentioned about spreading the awareness of CKD, and urge people to get tested for possible early stage CKD, so that preventive measures can be taken to help in prolonging or even in some cases, reverse the progression of CKD, especially those with a history or family history of diabetes and/or high blood pressure (2 of the main causes of CKD). After the nurse at the unit, checked my lungs, he said it was very diminished on the right side, and they called my neph, to have an x-ray done. After i returned home, after the x-ray, an hour later, a doctor called about discussing the possibility of doing a procedure to drain the fluid from around my lungs, and he also said i had a collapsed lung, and this wasn't good news for me, regarding my surgerical procedures, because of this collapsed lung, i can't have anesthesia (i hope i spelled that correctly), so my neph called, and told me, that they will have to put off, the surgery until next month sometime. Of course this very much was disappointing news to me, because like i mentioned during my early return to hemo, i don't like doing hemo from a catherer, well i will have to endure it for a little while longer, and besides after this draining procedure is complete, i was told i should feel much better, and have more energy, as it was very draining for me, i would cough consistently all day, and then at night, and i had very restless nights, having to sleep on top of four pillows, just to get some relief from shortness of breathe. I know what you say, when it rains, it pours, my sentiments exactly, but i am a trooper, i been through so much through out this 20 yr journey, and i have triumph, with my faith and belief in him, i know all things are possible, and like i always say, God is always in the business of healing, but something good came out of this, i can still participate in our annual PKD walk for the cure event in San Francisco on Oct 9. I didn't want to have my surgery before that time, as i needed to go through a recovery stage, and i may not be able to do my booksigning, as i look forward to that every year. I will be having my draining procedure, next wednesday. Wish me all the best. Until my next blog, take care and all the best to my followers.
Glo

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